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On Monday night we took monchichi to the ER per our neurologist's instructions. At that point he had had well over 20 seizures in about an hour or so.
Within 12 hours he had over 100 seizures. They are drop seizures and staring seizures. It was horrifying to say the least.
We were admitted to CHOC that night and we just got home about an hour ago.
He is fine now; new meds, new tests.
It was very scary.
We are exhausted.
I will give the long version tomorrow.
Whew.
About The Author
- Jo Ashline
- Jo is a mom to two boys; Superman, who is six, and a mitten and sweatband aficionado, and Mon-chichi, who is seven and has autism and epilepsy and a deep passion for big rigs and soup cans. She is married to Best Husband Ever, a Superhero in his own right who puts up with her panic attacks, OCD, and peanut butter addiction. In exchange, she cooks him dinner and lets him pick the radio stations during long car rides. A kindergarten teacher by day, Jo recently came out of the closet as a writer and is working on her first book, a memoir about raising a child with special needs.
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2 comments:
Hi Jo, I hope he is okay. Your family is in my prayers. Buzi.
Oh no.
Sending you a huge virtual hug Jo.
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